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29-Sep-2017 19:57

unfortunately, this damage meant that as well as removing the broken bits of bowel, i was going to need an ileostomy bag put in place.

for me, this is the hardest thing i ever had to go through and i honestly hope and pray it's the hardest this illness will ever get for me.

over the past year and a half, i have had difficulty coming to terms with my bag.

i have gone through stages of being so disgusted with myself i couldn't even look at my own body in the mirror, i haven't even been able to tell my friends because i felt so ashamed and embarrassed. the reality is that this bag saved my life, it also gave me back the life that my illness took away from me.

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not only had my bowel become completely closed off at one bit, but the bowel had also managed to twist itself inside of itself at another bit.

Trust your gut a little – metaphorically and literally!

Once you know what you really can’t eat, let people know – friends, family, restaurants – if there is something that doesn’t agree.

However, when it comes to adjusting to your new body and how to cope with it in the real world, in all honestly, unless they have one, they really have no clue. In my head, I think that calling it that meant I could talk about it and nobody would know what I was talking about. Whilst after any operation on the bowel you have to be careful what you eat, over time I have dipped my toe and found there are plenty on that ‘List of Doom’ that I can still enjoy and without any hospital visits or complications – but there are also some I really can’t! Everybody is different, so the NHS and online lists encompass all the possible foods that can affect anybody and everybody, to be safe.

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Missing our family holiday need another 😁😁 #fun #family #love #Crohn's #crohnsdisease #crohnsawareness #crohnswarrior #crohnsandcolitis #colostomy #colostomybag #ostomy #ostomate #ostomyawareness #ostomyfashion #crohnslife #crohnsgirl #crohnsmom #crohnsfighter @crohnsandcolitisuk A post shared by Yvonne Holley Crohns Mummy 💄 (@yvonneholley_crohnsmummy) on I remember my Stoma nurse advising me to give it a name. In reality, I believe it was a way of devaluing it and making it seem irrelevant to my life – which obviously it wasn’t, as it had probably saved it! I’m definitely not saying go and try all the foods they say don’t, but what I am saying is learn about your body and the foods that work for you, with medical supervision. 😛🍫Banana cinnamon quinoa flake porridge loaded with all things yummy!!!!!

Nope, it’s 10 years of living with a colostomy bag. However, a lot has changed in the last few years and there are so many things I wish I’d known earlier on.

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